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“渐冻人”(运动神经元病)患者康复中(中英对照)

手机端链接    来源:新浪博客  作者:医行天下

 

关于运动神经元病,目前医疗界还没更好的治疗方法。Peter虽然是英国人,但对自愈法笃信不疑,去年专程从伦敦飞到德国参加体验营,回家后更加坚持不懈拍打拉筋,其间经历种种令人难以想象的气冲病灶,但他在太太的支持下,度过了重重难关和艰难的岁月,现在病情逐渐好转。希望大家关注、学习Peter夫妇的精神!他们的心灵变化很大,故身体随之变好!太太的精神也不断被老公提升!

英国患者来信谈此病,正好国内读者来信问此病,巧合乎?

   
    萧老师:
    您好,我在网络上看到网友推荐您的拍打拉筋疗法,我正在看您的博客,冒昧给您去信,是因为我的家人最近被诊断出得了肌萎缩侧索硬化症,即俗称的“渐冻人”,(ALS),中国目前有二十万渐冻人。该病与癌症,爱滋病齐名被列为世界五大绝症。ALS特征是脑和脊髓中的运动神经细胞(神经元)的进行性退化由于运动神经元控制着使我们能够运动、说话、吞咽和呼吸的肌肉的活动,如果没有神经刺激它们,肌肉将逐渐萎缩退化,表现为肌肉逐渐无力以至瘫痪,以及说话、吞咽和呼吸功能减退,直至呼吸衰竭而死亡。由于感觉神经并未受到侵犯,它并不影响患者的智力、记忆或感觉。病情的发展一般是迅速而无情的,从出现症状开始,平均寿命在2-5年之间。这种病人您有关注吗?有治疗过吗?我现在在寻找一些可行的治疗方法,不知您是否接触过这类型的病人?治疗效果好吗?
       在治疗中,我应该怎么做呢?我非常需要帮助,期待您的回信。
       王明路 2013-1-8

Jo给萧老师和何菲的信

 

亲爱的萧老师、何菲:

祝二位元旦快乐,身体健康!

向二位简要汇报一下我们的进展情况。

值得高兴的是, Peter一直很积极乐观,并且每天坚持拍打拉筋。他现在辞职在家全身心投入拍打拉筋。这对他的心理健康有帮助,让他有事可忙,有了活下去的动力。他坚信自己总有一天会痊愈。我在帮他拍打,不过,恐怕我并不总是那么乐观。我有时会情绪失控,陷入完全绝望的深渊。但是,在读了萧老师的博客之后,我大多数时候又会振作起来。

在过去8个月的拍打拉筋过程中,Peter经历了各种各样的气冲病灶反应:

1)双小腿、右上臂麻木,持续了至少5个月。现在,症状已经消失了。

2)有一次,他的胳膊内侧、身体两侧和大腿上出现了许多小疙瘩。有些疙瘩痒,有些就像是小黑头。现在,疙瘩已经完全消失了。

3)他的左腿肿了好几个星期。之后,双踝关节周围的皮肤开始变黑、变硬。这个过程持续了4-5个月。现在,硬化的皮肤有点变软了,病患面积在缩小。

4)他的左脚大脚趾一直在发抖,有7个月了。最近,他发现自己可以轻轻地动一动大脚趾了,并且,他的力量在明显恢复。这让他高兴坏了。当然了,要完全恢复正常还有很长的路要走。

5)我们发现他的右臂上长了一个囊肿,一两个月就从豌豆那么大长到了3厘米。我给他连续拍打了这个部位,囊肿破了几次,流出了黏黏的脓血和水。现在,囊肿已经消失了。

6)一两个月前,我给他好好拍打了一次。之后,他突然发现自己不能从沙发上起身了。我们现在将沙发垫高了,方便他起身。

7)一个星期前,我又拍打了他的大腿和小腿,他不能从普通的椅子上起身了。现在,他坐在餐台边的酒吧凳上用餐。我们会给他买一个增高坐垫,让他回到餐桌和我们一块儿用餐。

8)前两天他从楼梯上摔了下来,自己起不来了。有人建议,为了Peter的健康和安全,我们得安装一个楼梯升降机。起初,Peter不同意,要自己坚持到底,不依赖任何设施。但是,在这种情况下,我们不能让他出现任何闪失,便同意安装楼梯升降机。Peter告诉安装工人他正在经历气冲病灶,这个阶段过去之后,他就不需要楼梯升降机了,问他们能不能买回去?哈哈!到时候,我会非常乐意将楼梯升降机捐赠给有需要的人。

9)拉筋时,Peter总能感觉腿脚和胳膊上有能量流动,或者说有一种特别的感觉。

10)拍打拉筋之后,他出现了打嗝、放屁、小便次数增加等症状。

11)他这两天晚上发热,大汗淋漓。

12)他还感觉到双脚血液充足,这是他以前没有过的。他感觉整个两条腿就像剧烈运动后般酸痛。这让他很激动,因为他的肌肉似乎得到了锻炼,尽管他实际上只是做了拍打和拉筋。

13)几周前他开始自拍。他现在还没有多少力气。不过,他已经能断断续续地拍打45分钟了。这已经是一大进步了,他刚开始时只能拍5分钟。

14)每天早上他会绕着屋子慢跑40分钟左右,中途不会停下来,而4个月前他得停上4-5次。

15)我注意到,做完冥想之后,他可以用右手握拳拍打后腰30次以上,而4个月前,他只能拍一两下。

我们被告知运动神经元病是一种无治的进行性疾病。这种病只会恶化,不会好转。Peter身上已经出现了好转迹象 —— 尽管不是大的转变。我们知道,要让他完全康复,我们还有很长的路要走。但是,我们仍然满怀希望,我们会继续坚持拍打拉筋。

世界上还没有治愈“渐冻人”的先例,但是,也没有人用过拍打拉筋来对治这种疾病。我们真希望Peter能成为这个“先例”,希望可以因此帮助到许许多多受这种疾病折磨的人们。

不知我们做得对不对?我们还需要做些别的什么吗?我们会一如既往地珍视您们的支持和建议。

祝二位一切安好!

Jo Hart

2013年1月3日

何菲的回信

亲爱的Jo和Peter,

也祝您们二位元旦快乐!

Jo,非常感谢您写来长信,详细告知Peter的自愈经历。看到Peter在你的帮助下改善那么大,我真为您们感到高兴!Peter的信心和坚持拍打拉筋的决心让我特别感动!

我很肯定您们做的是对的(我相信萧老师也这么认为)。即便是最小的改善(包括气冲病灶)也会提升Peter的生命质量。我的建议是:在冬天,Peter可以逐渐延长拉筋和冥想的时间,拍打相对轻柔一些。我相信,气冲病灶会过去的。

亲爱的Jo,在帮助Peter拍打拉筋的过程中,您会发现这也是一个自我疗愈的过程。有时,您会比病人更痛苦。但是,如果您能挺过来,就会身心健康双丰收。在我们帮助别人“疗愈”的过程中,实际上,我们同时也是在“自我疗愈”。这个过程我也经历过。Jo,您和Peter做得很棒!您给了Peter强有力的支持!就像萧老师常说的那样,“行动!行动!再行动!”(Just do it!)

我想,萧老师可能会给您们更多建议。

如果您们需要帮助,请随时给我写信或者打电话。希望您们能够再一次参加体验营。

祝您和Peter吉祥如意!

何菲

2013年1月4日

萧老师的回信

亲爱的Jo,

请接受我诚挚的祝贺!您和Peter做得太棒了!您们正在创造历史!

我完全赞同何菲的建议。另外,在可能的情况下,可以给Peter补充更多的营养食品。如果他的胃口好了,会是一个非常好的转折点!

至于拍打拉筋,按何菲的建议去做就行。多做冥想,一有时间就做。

记得做好记录!

祝二位好运!

宏慈

2013年1月5日

Patient with Motor Neuron Disease (MND) making improvements thanks to Paida and Lajin

Jo’s Mail to Mr. Xiao and He Fei

Dear Master Xiao and Fei,

Happy New Year and good health.

Just a quick note to report to you how we are getting on.

The good news is Peter continues to be very positive and very committed to Paida and Lajin without fail every day. He has now resigned and taken on Paida and Lajin as a full time job. Psychologically it is doing him good. It keeps him busy and a purpose for living. He strongly believes he will fully recover one day. I help him with the Paida, but I’m afraid I am not always that positive. Sometimes I let the emotion take over me and get completely despaired. However, after reading Master Xiao’s blog, I pick myself up most of the time.

In the last 8 months of Paida and Lajin, Peter experienced all sorts of healing crises, including:

1) Numbness in both of the lower legs and upper right arm. This lasted at least 5 months. It has now disappeared.

2) One time loads of bits appeared on his inner arms, side of the body and thighs, some of which were itchy, others were just like tiny blackheads. They are all healed now.

3) His bad foot, the left foot was swollen for a good few weeks. After that, the skin around the ankles turned black and hardened. It lasted four, five months. There are signs that the hard skin starts to soften a tiny bit and that the affected area is shrinking.

4) His big left toe has been flapping for a while, say seven months. Recently, he found that he can lightly wriggle the toe and the strength is obviously improving, though it is far from getting back to normal. He was over the moon with it.

5) A cyst was found on his right arm which had grown from a pea size to 3cm within a couple of months. After Paida it continuously, it burst a few times with lots of thick gluey blood and water oozing out. Now the cyst was gone and healed.

6) After a good session of Paida a couple of months ago, he suddenly couldn’t get up from the sofa. We have now raised the sofa so that it is easier for him to get up.

7) A week or so ago, after another effective Paida on his thighs and legs, he experienced not being able to get up from the normal chair. He now sat on the bar stool at the breakfast counter for his meals. We are going to acquire a booster cushion so that he can continue to have meals with us at the dinning table.

8) A couple of days ago he has a fall at the top of the stairs and couldn’t hoist himself up. We were told to install a stair lift for health and safety reason. At first he refused and insisted to soldier on without relying on any equipment. However in this case, we cannot afford to put his life in danger but to agree to the stair lift. He told the guy that he was suffering some sort of healing crisis at the moment. Once he comes out of it, he won’t need the stair lift any more and can they buy it back. Ha Ha! When the time comes, I am more than happy to donate it to somebody who needs it.

9) When he does Lajin, he always feels the energy or a special sensation flowing around his legs, arms and feet.

10) He does burp, breaking winds, wee more after Paida and Lajin.

11) The last couple of days he felt very hot during the nights and sweated a lot.

12) He also felt his two feet were filled with blood which is something he never felt before. He felt soreness on both of his thighs and legs as if after a strenuous exercise. He was thrilled to feel that his muscles seem to have a workout even though in real life he did nothing but Paida and Lajin.

13) He started to self Paida a few weeks ago. Owing to his condition, he cannot produce a lot of force. Nevertheless, he can manage a good 45 minutes on and off basis, in comparison to only 5 minutes in the beginning which is a major improvement.

14) Every morning he continues to do the slow jogging round the house for about 40 minutes without any stop in comparison to stopping 4 to 5 times four months ago.

15) I notice after meditation, he can use his right fist to strike the back of his waist over 30 times, whereas four months ago, he could only strike once or twice.

We were told motor Neuron disease is a non curable and progressive illness. It will only deteriorate but will never get better. Peter shows signs of improvement even though very small ones. We know that we may be a long way from a full recovery but we remain hopeful and persevere with Paida and Lajin.

Nobody in the world has ever recovered from the disease but nobody ever treat it by Paida and Lajin either. We just couldn’t wait to be the first one so that we can help many other people who are suffering from it.

Please let us know if we are doing the right thing. Is there anything else we should be doing? We treasure your support and advice as always.

Best regards,

Jo Hart

January 3, 2013

 

He Fei’s Reply

 

Dear Jo and Peter, Happy New Year to you too!

Thanks a lot for your long mail reporting all the details about Peter’s self-healing! I am very glad to see the great improvement through your effort, especially very much touched by Peter’s confidence and determination of doing Lajin and Paida!

I am personally very sure that you have been doing the very right thing. (So does Meister Xiao, I believe.) Even the smallest improvement of Peter paves the way to a better quality of life. Healing crises are included. I suggest that Peter in the winter time, could slowly extend more time for Lajin and meditation and do Paida comparatively gentler. The crisis will be over, I am sure.

Dear Jo, during supporting Peter with Lajin and Paida, you will find out, it’s also a process to heal yourself. It might be sometimes even more suffering than the patient. But if you continue doing it, you will improve yourself physically and psychologically. As we intend to “heal” others, we actually “heal” ourselves at the same time .That’s my experience too. Look, Jo, Peter and you have been doing so well. Your support to him is remarkable! Please just do it (like Meister Xiao always says)!

I think that Meister Xiao might give you more suggestions.

Please write me or call me any time you need help.

I wish you guys could join the workshop once more.)!

Warm regards, also to Peter!

吉祥如意

Fei

January 4, 2013

Mr. Xiao’s Reply

Dear Jo,

Please accept my sincere congratulations! Peter and you have done an excellent job! You are making history!

I agree with all that Fei says, even to all the detailed suggestions from her! One more thing to add: If possible, try to eat some more nutritious food. If his appetite increases, that will be a very good turning point!

For Paida and Lajin, just follow Fei’s suggestion. Please always do meditation whenever you have time.

Please always keep records!

Good luck!

Hongchi

January 5, 2013

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